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Newly Diagnosed?

It is important to remember that the many medical and behavioural issues associated with Prader-Willi Syndrome, will be presented to you by your child’s doctors, specialists and some internet sites. Please understand that your child may not experience every challenge, and those that do will vary in severity significantly. No two children with Prader-Willi Syndrome are alike, and there is absolutely no way to predict, as an infant or young child, how Prader-Willi Syndrome will present in the future. 

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Funding Support

Find ways to get extra financial support for you and your child including information on the National Disability Insurance Scheme.

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Useful Links

Find more help from other professional organisations working with Prader-Willi Syndrome.

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Advice for Family and Friends

To a family living with Prader-Willi Syndrome, you are a lifeline and an essential extension of their family unit. Your love and support will be repaid tenfold, by your family member or friend, and a family with confidence that they can count on you.

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