Time Out Camp 2023

Time Out Camp encourages Australians living with PWS and their families to develop friendships, build resilience and self-confidence.

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PWSA Victoria Training

Tailored training and Education programs available to families, Disability Support Providers, Employers, Supervisors, Educators, Medical and Allied Health Professionals.

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Prader-Willi Syndrome Association of Victoria

Empowering people living with Prader-Willi Syndrome through support, education, advocacy and awareness

What is Prader-Willi Syndrome?

Get the facts

Newly Diagnosed?

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Family and Friends

Get Support

How can we help you?

View our services

Join our community and enjoy ongoing help & support.

Members receive a quarterly newsletter with up to date information as well as notification of upcoming events and dates. Joining the Association gives you the opportunity to make contact with other parents and exchange information.

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Important Tools and Resources

Beyond the Diagnosis Series Resource Kit

The PWS beyond the Diagnosis series of information booklets is a resource that grows with your child and contains all the information you need to help you navigate the PWS journey all in one neat package.  

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First Response Kit

First Response Kit

Information for people with PWS, their families, disability providers and advocates.

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Australian Medical Alert Booklet

Australian Medical Alert Booklet

This booklet includes vital information with regards to medical complications that can arise in patients with PWS

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Booklets and Brochures

Booklets and Brochures

Learn more about PWS with our growing library of downloadable resources

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Keep up-to-date with all the latest news

Join other Amazing Women at the PWSA Vic Mother’s Day Luncheon

Wear a little orange, and enjoy a complimentary lunch and drinks while we celebrate the most powerful, incredible Mums in the world! Listen to a panel of amazing speakers…

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Join committed clinicians and have input into co-designing a State-wide model of care.

Imagine if wherever you lived in Victoria you had access to the same evidence-based health care for your family member living with Prader-Willi Syndrome Here is your opportunity to…

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Join David & Cooper Rhys-Jones with A/Prof. Tom Connell at the RCH Good Friday appeal

Tune in tomorrow to the 2023 Good Friday Appeal on Channel 7 at 12.40pm to see our amazing media ambassador, David Rhys-Jones and his son Cooper raise awareness about…

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Help create the change we need!

The Prader-Willi Syndrome Association of Victoria (PWSA Victoria) believes that every person living with Prader-Willi Syndrome deserves every opportunity to live a full and inclusive life. By supporting the PWSA Vic you are helping us:

  • provide vital on the ground support and services to families living with PWS,
  • provide education and training programs to families, Disability Support Providers, Employers, Supervisors, Educators, Medical and Allied Health Professionals,
  • continue in our advocacy efforts to create positive changes that will continue to impact the lives of all people living with Prader-Willi Syndrome now and in the future.
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