Time Out Camp 2022

Time Out Camp encourages Australians living with PWS and their families to develop friendships, build resilience and self-confidence.

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PWSA Victoria Training

Tailored training and Education programs available to families, Disability Support Providers, Employers, Supervisors, Educators, Medical and Allied Health Professionals.

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Prader-Willi Syndrome Association of Victoria

Empowering people living with Prader-Willi Syndrome through support, education, advocacy and awareness

Join our community and enjoy ongoing help & support.

Members receive a quarterly newsletter with up to date information as well as notification of upcoming events and dates. Joining the Association gives you the opportunity to make contact with other parents and exchange information.

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Important Tools and Resources

Beyond the Diagnosis Series Resource Kit

The PWS beyond the Diagnosis series of information booklets is a resource that grows with your child and contains all the information you need to help you navigate the PWS journey all in one neat package.  

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First Response Kit

First Response Kit

Information for people with PWS, their families, disability providers and advocates.

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Australian Medical Alert Booklet

Australian Medical Alert Booklet

This booklet includes vital information with regards to medical complications that can arise in patients with PWS

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Booklets and Brochures

Booklets and Brochures

Learn more about PWS with our growing library of downloadable resources

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Keep up-to-date with all the latest news

2022 Time Out Camp

A Victorian Run Camp for all Australians living with Prader-Willi Syndrome. The Time Out Camp is like no other camp on offer. Whilst there are many camps available to…

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Preparing for a challenging Flu season

Australia is expecting a challenging flu season combined with an increase in COVID-19 infections. You can put things in place to help ensure you are ready to best support…

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She is amazing and we are so proud of her – Meet Sara & Family

Sara enjoys playing with her sisters and other children. She is loveable, tender and caring. She likes to play with her baby doll – feed her, and cuddle her….

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Help create the change we need!

The Prader-Willi Syndrome Association of Victoria (PWSA Victoria) believes that every person living with Prader-Willi Syndrome deserves every opportunity to live a full and inclusive life. By supporting the PWSA Vic you are helping us:

  • provide vital on the ground support and services to families living with PWS,
  • provide education and training programs to families, Disability Support Providers, Employers, Supervisors, Educators, Medical and Allied Health Professionals,
  • continue in our advocacy efforts to create positive changes that will continue to impact the lives of all people living with Prader-Willi Syndrome now and in the future.
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