Prader-Willi Syndrome Association of Victoria

Empowering people living with Prader-Willi Syndrome through support, education, advocacy and awareness

PWSA Victoria Training

Tailored training and Education programs available to families, Disability Support Providers, Employers, Supervisors, Educators, Medical and Allied Health Professionals.

15 for 15 Challenge

Prader-Willi Syndrome does not stop so neither can we! Will you be joining the Challenge this May?

Join our community and enjoy ongoing help & support.

Members receive a quarterly newsletter with up to date information as well as notification of upcoming events and dates. Joining the Association gives you the opportunity to make contact with other parents and exchange information.

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Keep up-to-date with all the latest news

PWSA Victoria working effectively in a COVID world

While many parts of the country have opened into the post COVID-19 world, Victoria and in particular Melbourne are still facing an enduring hard lockdown which has severely hurt the effectiveness of small organisations such as ours to operate and…

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Prader-Willi Syndrome Research Update (January 2021)

Below is a summary of some recently published PWS-related research.   Source: Foundation for Prader-Willi Research Genetic research  PWS is caused by the absence of paternally expressed gene products from a small…

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Reconnecting with our community after COVID

After close to a year of lockdown and restrictions, we are eager to reconnect with our PWS Community here in Victoria and provide opportunities for families to once again…

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Help create the change we need!

The Prader-Willi Syndrome Association of Victoria (PWSA Victoria) believes that every person living with Prader-Willi Syndrome deserves every opportunity to live a full and inclusive life. By supporting the PWSA Vic you are helping us:

  • provide vital on the ground support and services to families living with PWS,
  • provide education and training programs to families, Disability Support Providers, Employers, Supervisors, Educators, Medical and Allied Health Professionals,
  • continue in our advocacy efforts to create positive changes that will continue to impact the lives of all people living with Prader-Willi Syndrome now and in the future.
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