Prader-Willi Syndrome Association of Victoria

Empowering people living with Prader-Willi Syndrome through support, education, advocacy and awareness

PWSA Victoria Training

Tailored training and Education programs available to families, Disability Support Providers, Employers, Supervisors, Educators, Medical and Allied Health Professionals.

15 for 15 Challenge

Prader-Willi Syndrome does not stop so neither can we! Will you be joining the Challenge this May?

Join our community and enjoy ongoing help & support.

Members receive a quarterly newsletter with up to date information as well as notification of upcoming events and dates. Joining the Association gives you the opportunity to make contact with other parents and exchange information.

Find out more

Keep up-to-date with all the latest news

EAP Assist

The EAP Assist counselling service is still open and taking calls from PWSAV Families and Friends of the Association.   EAP assist have recently launched a new app.  The company…

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At home learning strategies for people with PWS during COVID-19

A summary of a presentation to the Foundation for Prader Willi Research by Elizabeth Roof, Senior research specialist, Vanderbilt Kennedy Center, USA The COVID-19 pandemic is causing disruption globally. …

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I can… because I am Archie

In May 2020 we took Archie to Sydney for his first NAPA Intensive. NAPA (Neurological and Physical Abilitation) Centre. The NAPA Intensive consisted of a 3 week block of…

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Help create the change we need!

The Prader-Willi Syndrome Association of Victoria (PWSA Victoria) believes that every person living with Prader-Willi Syndrome deserves every opportunity to live a full and inclusive life. By supporting the PWSA Vic you are helping us:

  • provide vital on the ground support and services to families living with PWS,
  • provide education and training programs to families, Disability Support Providers, Employers, Supervisors, Educators, Medical and Allied Health Professionals,
  • continue in our advocacy efforts to create positive changes that will continue to impact the lives of all people living with Prader-Willi Syndrome now and in the future.
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