Time Out Camp 2024

Time Out Camp encourages Australians living with PWS and their families to develop friendships, build resilience and self-confidence.

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PWSA Victoria Training

Tailored training and Education programs available to families, Disability Support Providers, Employers, Supervisors, Educators, Medical and Allied Health Professionals.

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Prader-Willi Syndrome Association of Victoria

Empowering people living with Prader-Willi Syndrome through support, education, advocacy and awareness

Join our community and enjoy ongoing help & support.

Members receive a quarterly newsletter with up to date information as well as notification of upcoming events and dates. Joining the Association gives you the opportunity to make contact with other parents and exchange information.

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Important Tools and Resources

Beyond the Diagnosis Series Resource Kit

The PWS beyond the Diagnosis series of information booklets is a resource that grows with your child and contains all the information you need to help you navigate the PWS journey all in one neat package.  

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First Response Kit

First Response Kit

Information for people with PWS, their families, disability providers and advocates.

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Australian Medical Alert Booklet

Australian Medical Alert Booklet

This booklet includes vital information with regards to medical complications that can arise in patients with PWS

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Booklets and Brochures

Booklets and Brochures

Learn more about PWS with our growing library of downloadable resources

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Keep up-to-date with all the latest news

Experience the Ultimate Family Retreat at the New 2024 Time Out Camp for PWS!

The Prader-Willi Syndrome Association of Victoria is thrilled to announce that the 2024 Time Out Camp is moving to a new, bigger, and better location! This year, the camp…

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The Transformative Power of Intensive Physiotherapy for Individuals with Prader-Willi Syndrome

Intensive physiotherapy programs are designed to provide concentrated and comprehensive therapeutic interventions over a specific period. These programs involve a variety of exercises and techniques tailored to meet the…

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2024 PWS Awareness Collection

We are excited to launch this year’s Awareness collection ahead of PWS Awareness month in May. This year, we’re embracing a powerful message that resonates deeply for every single…

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Help create the change we need!

The Prader-Willi Syndrome Association of Victoria (PWSA Victoria) believes that every person living with Prader-Willi Syndrome deserves every opportunity to live a full and inclusive life. By supporting the PWSA Vic you are helping us:

  • provide vital on the ground support and services to families living with PWS,
  • provide education and training programs to families, Disability Support Providers, Employers, Supervisors, Educators, Medical and Allied Health Professionals,
  • continue in our advocacy efforts to create positive changes that will continue to impact the lives of all people living with Prader-Willi Syndrome now and in the future.
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