Currently, there is no known cure for Prader-Willi Syndrome (PWS). Research is finding that the lives of people living with Prader-Willi Syndrome can be improved with early diagnosis and careful management of symptoms.
It can be difficult for families to keep from thinking and worrying about the future, and a lot of information regarding Prader-Willi Syndrome can be daunting and overwhelming. While it is sensible to contemplate and make provision for the years ahead, there will be new developments and change, and there are many reasons to be hopeful.
The use of Growth Hormone Treatment has been one of the most important developments in recent years as it has transformed the physical appearance and development of children and adults with Prader-Willi Syndrome. More information on Growth Hormone can be found on the Growth Hormone section in our website.
Around the world, there is more research and are more clinical trials taking place now than ever before that are investigating potential treatments for Prader-Willi Syndrome. There are a variety of new drugs currently in development that researchers are optimistic will possibly eliminate some of the challenges of Prader-Willi Syndrome. Most of these developments have occurred in the last few years. There have been many recent advances in genetic research. Continuing research will hopefully provide new therapies, information and treatments.
Finding a cure and treatments for PWS is something all families are desperately wanting, but it is essential to maintain some balance. Parents should appreciate and love their child now, and assist them in reaching milestones, establish good dietary and exercise habits, build their child’s strengths and support their weaknesses. Making practical plans for the future is essential and should not be delayed.
but NEVER lose hope!
For more information on current research:
Prader-Willi Research Foundation Australia
Foundation for Prader-Willi Research