There are many factors that may cause difficulties in people with PWS, these include adverse reactions to medications, high pain tolerance, respiratory issues, vomiting rarely occurs and unstable temperature. Adrenal insufficiency may also occur. Severe medical complications can develop rapidly in individuals with PWS.
The Australian Medical Alert Booklet should be kept on you at all times and should be shared with anyone supporting or caring for a person with Prader-Willi Syndrome. This booklet has been reprinted with permission from the Prader-Willi Syndrome Association (USA) and adjusted to suit Australian standards. This booklet includes vital information with regards to medical complications that can arise in patients with PWS. The Australian Medical Alert Booklet can be found on the Prader-Willi Syndrome Australia website.
This booklet can be purchased in a kit which includes guidance for hospital visits and a wallet card for people with PWS to use. The Medical Alert Kit can be purchased from Prader-Willi Syndrome Australia.