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Brave, outrageous and adventurous – Meet Jamal

Jamal loves watching videos and playing games on his iPad. He also loves building Lego,…

I am my own self – Meet Amelia

Amelia is 16 years old. She has a 14-year-old brother, Sean. Born and raised in…

Final call for Caregivers to have their say

We have received some great information regarding what an ideal model of healthcare might look…

It’s Time to have your say

We have received some great information regarding what an ideal model of healthcare might look…

Succession Planning

Through the eyes of a parent Most of you, like me, have probably thought about your children’s…

Statewide Care Plan

Do you think people with Prader-Willi Syndrome deserve better? Better care? Better support? Better understanding?…

Starting Prep Together

In the PWS Advocacy Space

In most cases, there are no bells and whistles or headline banners that announce much…

Leading an active lifestyle with PWS

“Sport is very important, it’s good for your health, it’s not that you can’t do…