Archives

It’s Time to have your say

We have received some great information regarding what an ideal model of healthcare might look…

Succession Planning

Through the eyes of a parent Most of you, like me, have probably thought about your children’s…

Statewide Care Plan

Do you think people with Prader-Willi Syndrome deserve better? Better care? Better support? Better understanding?…

Starting Prep Together

In the PWS Advocacy Space

In most cases, there are no bells and whistles or headline banners that announce much…

Leading an active lifestyle with PWS

“Sport is very important, it’s good for your health, it’s not that you can’t do…

PWS Individual Transitions into Shared Accommodation

‘Transition‘ is often the forgotten word when discussing the life cycle of someone living with…

PWS Research Update

Below is a summary of some recently published PWS-related research. Source: fpwr.org Vision problems in…

Jolly Holiday Christmas Party

We’re out of lockdown, the sun is shining, Christmas is around the corner and it’s…