6th Asia Pacific Prader-Willi Syndrome Conference

Scheduled for August 30th and 31st at Rydges Central in Sydney Australia, this conference is the paramount event for sharing knowledge about PWS in the Asia Pacific region for 2024. It seeks to bring together researchers, clinicians, industry experts, and families, making it an essential gathering for anyone involved in the care, support, and understanding of PWS.

This pivotal conference co-hosted by PWRFA, PWSA Aust, PWSA NZ, PWSA Malaysia, and PWSA Thailand, is dedicated to advancing knowledge and support of Prader-Willi Syndrome (PWS), and will offer both in-person and virtual attendance options, ensuring accessibility for all interested parties, regardless of location.

Spanning two days, the conference is designed to cater to a diverse audience, including researchers, parents, and professionals all connected by the goal of enhancing the lives of those with PWS.

Research Day (30th August)

The first day is dedicated to cutting-edge research, led by the esteemed Prader-Willi Research Foundation Australia (PWRFA). It’s a unique opportunity for scientists and researchers to share, collaborate, and ignite new ideas in the fight against PWS.

A Day for Parents, Professionals, and Support Providers (31st August)

The second day shifts focus to practical support, education, and resources for parents, professionals, and support providers. Covering an array of essential topics such as genetics, neurotypical behaviors, healthcare, physiotherapy, nutrition, and sleep, the program is designed to provide invaluable insights and tools for those providing day-to-day care and support.

Attendees have the flexibility to register for the entire two-day conference or select the day that most aligns with their interests and needs. Whether you’re a researcher eager to dive into the latest discoveries, a parent looking for guidance and support, or a professional dedicated to making a difference in the lives of those with PWS, this conference promises a wealth of knowledge, networking opportunities, and inspiration.

Don’t miss this chance to be part of a community driving change and improvement in the lives of individuals with Prader-Willi Syndrome. Register now to secure your spot at this essential event for the PWS community.

Conference Details

Start: 30th August – 8:00am

End: 31st August – 9:00pm

Venue:

Rydges Sydney Central, Australia

Click here to book Accommodation

Registration: Registrations will open shortly.

Abstract Submissions

Abstract Submissions are being accepted for the Research Day on August 30th. Ensure your submission includes the title, authors & their affiliations, and that the main body of the abstract is under 250 words. For any inquiries, reach out to Diane Webster, the Research Director at PWRFA, at diane.webster@praderwilli.org.au

The deadline for abstract submission is May 30th, 2024.

Submissions can be uploaded here

Conference Organising Committee:

Prader-Willi Syndrome Australia

Prader-Willi Research Foundation of Australia

Prader-Willi Syndrome Association New Zealand

Prader-Willi Syndrome Association of Malaysia

Prader-Willi Syndrome Association of Thailand

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Article By Renee Zilm

Renee excels in enhancing business operations by refining processes, ensuring organisations function with greater efficiency, effectiveness, and strategic insight. Beyond her professional expertise, Renee is a mother to four children. Her life took a poignant turn when her second youngest child was diagnosed with Prader-Willi Syndrome shortly after birth. Embracing this challenge with grace, Renee now dedicates her time to caring for her son while also committing herself wholeheartedly to her role as President of the Prader-Willi Syndrome Association of Victoria.

Ever since her son Harvey’s diagnosis, Renee has been a force of change, initiating and steering innovative programs and services designed to empower individuals with Prader-Willi Syndrome. Renee is deeply invested in the tenets of social justice and inclusion, driven by the conviction that individuals with disabilities deserve equitable access to support and resources necessary for a full and inclusive life. Her profound dedication to her work and her family reflects an overarching mission to ensure that every individual with disabilities can thrive in a supportive and inclusive society.