Brave, outrageous and adventurous – Meet Jamal
Jamal loves watching videos and playing games on his iPad. He also loves building Lego,…
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I am my own self – Meet Amelia
Amelia is 16 years old. She has a 14-year-old brother, Sean. Born and raised in…
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Final call for Caregivers to have their say
We have received some great information regarding what an ideal model of healthcare might look…
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It’s Time to have your say
We have received some great information regarding what an ideal model of healthcare might look…
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Succession Planning
Through the eyes of a parent Most of you, like me, have probably thought about your children’s…
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Statewide Care Plan
Do you think people with Prader-Willi Syndrome deserve better? Better care? Better support? Better understanding?…
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In the PWS Advocacy Space
In most cases, there are no bells and whistles or headline banners that announce much…
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Leading an active lifestyle with PWS
“Sport is very important, it’s good for your health, it’s not that you can’t do…
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PWS Individual Transitions into Shared Accommodation
‘Transition‘ is often the forgotten word when discussing the life cycle of someone living with…
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PWS Research Update
Below is a summary of some recently published PWS-related research. Source: fpwr.org Vision problems in…
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