It’s Time to have your say

We have received some great information regarding what an ideal model of healthcare might look like for people with Prader-Willi Syndrome and their families from the Loomio discussion board.

We will complete this consultation with two Zoom meetings on the 2nd December one at 10.00am and this will be repeated at 8.00pm. The second Zoom is a repeat opportunity, you would only attend one session. Both sessions will be for a maximum one hour.

You are welcome to join us in this Zoom meeting. This is an open invitation to have your say about a state-wide model of care.

Please register your interest by selecting your preferred session time below:

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Article By Renee Zilm

Renee excels in enhancing business operations by refining processes, ensuring organisations function with greater efficiency, effectiveness, and strategic insight. Beyond her professional expertise, Renee is a mother to four children. Her life took a poignant turn when her second youngest child was diagnosed with Prader-Willi Syndrome shortly after birth. Embracing this challenge with grace, Renee now dedicates her time to caring for her son while also committing herself wholeheartedly to her role as President of the Prader-Willi Syndrome Association of Victoria.

Ever since her son Harvey’s diagnosis, Renee has been a force of change, initiating and steering innovative programs and services designed to empower individuals with Prader-Willi Syndrome. Renee is deeply invested in the tenets of social justice and inclusion, driven by the conviction that individuals with disabilities deserve equitable access to support and resources necessary for a full and inclusive life. Her profound dedication to her work and her family reflects an overarching mission to ensure that every individual with disabilities can thrive in a supportive and inclusive society.