Join committed clinicians and have input into co-designing a State-wide model of care.

Imagine if wherever you lived in Victoria you had access to the same evidence-based health care for your family member living with Prader-Willi Syndrome

Here is your opportunity to meet with clinicians who share the same common purpose: to provide good healthcare for people impacted by Prader-Willi Syndrome. We will discuss potential areas for change to improve access and equity of healthcare services and consider the immediate, medium- and long-term priorities.

Your voice will help co-design what a state-wide model of care might look like for people living with Prader-Willi Syndrome.

When: April 20th 2023

Time: 9.00 am – 12.30pm

Where: Fundraising Resource Centre, Royal Children’s Hospital, Parkville 


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Article By Sarah Rees

Sarah lives in Geelong and her youngest son Jayden was born with Prader-Willi Syndrome. Sarah has been an active member of the Prader-Willi Syndrome community and holds a position on the Prader-Willi Syndrome Association of Victoria Inc. board and holds the position of Vice President and Event Coordinator.