Preparing for a challenging Flu season

Australia is expecting a challenging flu season combined with an increase in COVID-19 infections.

You can put things in place to help ensure you are ready to best support those who have Prader-Willi Syndrome (PWS) throughout the coming months.

It is very important to be fully prepared and armed with the best knowledge possible of how to manage COVID for someone who has PWS. This is especially significant in the home environment (whether the family home or supported living) as those are the supporters who can make the most comprehensive observations.

We have prepared a Prader-Willi Syndrome Covid Information brochure in collaboration with Professor Irving and Professor Buising from the Royal Melbourne Hospital Respiratory specialists department.

This document has been designed mainly for families of our adults, disability support providers and General Practitioners.


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Article By Renee Zilm

Renee excels in enhancing business operations by refining processes, ensuring organisations function with greater efficiency, effectiveness, and strategic insight. Beyond her professional expertise, Renee is a mother to four children. Her life took a poignant turn when her second youngest child was diagnosed with Prader-Willi Syndrome shortly after birth. Embracing this challenge with grace, Renee now dedicates her time to caring for her son while also committing herself wholeheartedly to her role as President of the Prader-Willi Syndrome Association of Victoria.

Ever since her son Harvey’s diagnosis, Renee has been a force of change, initiating and steering innovative programs and services designed to empower individuals with Prader-Willi Syndrome. Renee is deeply invested in the tenets of social justice and inclusion, driven by the conviction that individuals with disabilities deserve equitable access to support and resources necessary for a full and inclusive life. Her profound dedication to her work and her family reflects an overarching mission to ensure that every individual with disabilities can thrive in a supportive and inclusive society.