Reconnecting with our community after COVID

Members, Friends and Families of the Prader-Willi Syndrome Association of Victoria gathered together in a park, all smiling at the camera.

After close to a year of lockdown and restrictions, we are eager to reconnect with our PWS Community here in Victoria and provide opportunities for families to once again connect in person and facilitate the peer support that we have all be craving during a crazy period in all of our lives.

Members, Friends and Families of the Prader-Willi Syndrome Association of Victoria gathered together in a park, all smiling at the camera.

The PWSA Victoria will be hosting PWS Connect Days each month at different public locations all around Melbourne. This will give our families and members that have been unable to attend our larger celebration days an opportunity to meet other families close to home.

This is a free event for PWS families and PWSA Victoria members, wanting to catch up for a coffee and a chat.

Bring a picnic rug and a packed lunch, bring your friends and your family! We look forward to reconnecting with some old friends and meeting new friends over the next 12 months.

Upcoming PWS Connect Days

21st February @ 11amPlay Space adjacent to Geelong Botanical Gardens
28th March @ 11amGumnut Park & Adventure Playground
2nd May @ 11amRuffy Lake Park
31st May @ 11amLocation to be confirmed

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Article By Renee Di Genova

Renee excels in enhancing business operations by refining processes, ensuring organisations function with greater efficiency, effectiveness, and strategic insight. Beyond her professional expertise, Renee is a mother to four children. Her life took a poignant turn when her second youngest child was diagnosed with Prader-Willi Syndrome shortly after birth. Embracing this challenge with grace, Renee now dedicates her time to caring for her son while also committing herself wholeheartedly to her role as President of the Prader-Willi Syndrome Association of Victoria.

Ever since her son Harvey’s diagnosis, Renee has been a force of change, initiating and steering innovative programs and services designed to empower individuals with Prader-Willi Syndrome. Renee is deeply invested in the tenets of social justice and inclusion, driven by the conviction that individuals with disabilities deserve equitable access to support and resources necessary for a full and inclusive life. Her profound dedication to her work and her family reflects an overarching mission to ensure that every individual with disabilities can thrive in a supportive and inclusive society.