Time Out Camp Postponed until September 2021

A collage of photos taken of participants at the previous PWSA Vic Time Out Camp, with Time Out Camp 2021 logo in the centre.

It is with our deepest regret that the 2021 PWSA Victoria Time Out Camp will once again be postponed due to COVID.

Unfortunately, due to the onerous restrictions placed upon us because of the number of adults attending the camp and the number of volunteers and camp committee members that would be required to manage Camp Toolangi’s COVID policy effectively, we felt that we would not be able to provide the supporting, inviting and enjoyable environment that our families have come to enjoy and love over the years.

A collage of photos taken of participants at the previous PWSA Vic Time Out Camp, with Time Out Camp 2021 logo in the centre.

Camp will still be going ahead and we look forward to seeing our families in September!

For our newer members who arent famliar with this highly anticipated event, each year we host the PWSA Victoria Time Out Camp. This four-day event encourages those living with Prader-Willi Syndrome (PWS) and their families to develop friendships, build resilience and self-confidence all while gaining an understanding of PWS through education and support programs for Parents and Siblings (Carers) provided by professionals.

The camps main purpose is to encourage inclusion for all, by providing a range of activities and sessions for all ages. We encourage all families living with PWS from around Australia, to attend the camp as there is so much to be gained, by all members of the family, from the four-day event. 

Australian Residents living with PWS and their immediate family members may be eligible for NDIS funding to attend the PWSA Vic Time Out Camp and participate in the programs offered. In order to qualify, you must be able to demonstrate that the programs provided at the camp will be of benefit to the person living with PWS and their carer (Parents and Siblings) and should clearly be reflected in the goals you submit to the NDIA. Further information can be found below.

WhoAll Australians living with PWS and their immediate family/carer

Professional Carers can accompany those living with PWS, although people with PWS under the age of 18 MUST be accompanied by a parent or primary carer. However, if you wish to apply and are funded through NDIS for a professional Carer to assist you and your family, PWSA Victoria will cover the registration cost (incl. food and accommodation) of that Carer.  Please note that this only applies to NDIS funded Carers.
WhereCamp Toolangi
235 Spraggs Road,
WhenSaturday 25th September to Tuesday 28th September
WhatMeals & Accommodation
Camp Activities
Guest Speakers
Education and Carer Support Programs

We highly encourage our families to discuss NDIS funding with their planner to access funding for the Participation Fee for the Person with PWS and for Education and Support Program Parents and Siblings (carers).

Further information to assist with your discussions with NDIS can be found below.

Registration Form

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Article By Renee Zilm

Renee excels in enhancing business operations by refining processes, ensuring organisations function with greater efficiency, effectiveness, and strategic insight. Beyond her professional expertise, Renee is a mother to four children. Her life took a poignant turn when her second youngest child was diagnosed with Prader-Willi Syndrome shortly after birth. Embracing this challenge with grace, Renee now dedicates her time to caring for her son while also committing herself wholeheartedly to her role as President of the Prader-Willi Syndrome Association of Victoria.

Ever since her son Harvey’s diagnosis, Renee has been a force of change, initiating and steering innovative programs and services designed to empower individuals with Prader-Willi Syndrome. Renee is deeply invested in the tenets of social justice and inclusion, driven by the conviction that individuals with disabilities deserve equitable access to support and resources necessary for a full and inclusive life. Her profound dedication to her work and her family reflects an overarching mission to ensure that every individual with disabilities can thrive in a supportive and inclusive society.