United in Hope: 12th International PWS Conference

IPWSO is joining forces with the Prader-Willi Syndrome Association | USA (PWSA USA) and the Foundation for Prader-Willi Research (FPWR) to present “United in Hope” – an International PWS Conference scheduled for June 24-28, 2025, in Phoenix, Arizona.

This conference, themed “United in Hope,” signifies an unprecedented collaboration and is expected to become the most significant international gathering focused on PWS to date.

For details on the venue and hotel reservations, visit the PWSA | USA conference webpage at: www.pwsausa.org/2025-united-in-hope-conference

For information about visas, international travel, and travel fellowships, check out IPWSO’s conference page at: www.ipwso.org/news-events/conference-2025

Conference Details

Start: 30th August – 8:00am

End: 31st August – 9:00pm

Venue:

Arizona Grand Resort and Spa,

Phoenix, US

Venue Website: https://www.arizonagrandresort.com/

Conference Website: https://ipwso.org/news-events/conference-2025/

Conference Organising Committee:

International Prader-Willi Syndrome Organisation

Foundation for Prader-Willi Research

Prader-Willi Syndrome Association | USA

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Article By Renee Zilm

Renee excels in enhancing business operations by refining processes, ensuring organisations function with greater efficiency, effectiveness, and strategic insight. Beyond her professional expertise, Renee is a mother to four children. Her life took a poignant turn when her second youngest child was diagnosed with Prader-Willi Syndrome shortly after birth. Embracing this challenge with grace, Renee now dedicates her time to caring for her son while also committing herself wholeheartedly to her role as President of the Prader-Willi Syndrome Association of Victoria.

Ever since her son Harvey’s diagnosis, Renee has been a force of change, initiating and steering innovative programs and services designed to empower individuals with Prader-Willi Syndrome. Renee is deeply invested in the tenets of social justice and inclusion, driven by the conviction that individuals with disabilities deserve equitable access to support and resources necessary for a full and inclusive life. Her profound dedication to her work and her family reflects an overarching mission to ensure that every individual with disabilities can thrive in a supportive and inclusive society.