IPWSO is joining forces with the Prader-Willi Syndrome Association | USA (PWSA USA) and the Foundation for Prader-Willi Research (FPWR) to present “United in Hope” – an International PWS Conference scheduled for June 24-28, 2025, in Phoenix, Arizona.
This conference, themed “United in Hope,” signifies an unprecedented collaboration and is expected to become the most significant international gathering focused on PWS to date.
Experience the Ultimate Family Retreat at the New 2024 Time Out Camp for PWS!
The Prader-Willi Syndrome Association of Victoria is thrilled to announce that the 2024 Time Out Camp is moving to a new, bigger, and better location! This year, the camp…
The Transformative Power of Intensive Physiotherapy for Individuals with Prader-Willi Syndrome
Intensive physiotherapy programs are designed to provide concentrated and comprehensive therapeutic interventions over a specific period. These programs involve a variety of exercises and techniques tailored to meet the…
We are excited to launch this year’s Awareness collection ahead of PWS Awareness month in May. This year, we’re embracing a powerful message that resonates deeply for every single…
Renee excels in enhancing business operations by refining processes, ensuring organisations function with greater efficiency, effectiveness, and strategic insight. Beyond her professional expertise, Renee is a mother to four children. Her life took a poignant turn when her second youngest child was diagnosed with Prader-Willi Syndrome shortly after birth. Embracing this challenge with grace, Renee now dedicates her time to caring for her son while also committing herself wholeheartedly to her role as President of the Prader-Willi Syndrome Association of Victoria.
Ever since her son Harvey’s diagnosis, Renee has been a force of change, initiating and steering innovative programs and services designed to empower individuals with Prader-Willi Syndrome. Renee is deeply invested in the tenets of social justice and inclusion, driven by the conviction that individuals with disabilities deserve equitable access to support and resources necessary for a full and inclusive life. Her profound dedication to her work and her family reflects an overarching mission to ensure that every individual with disabilities can thrive in a supportive and inclusive society.