Brave, outrageous and adventurous – Meet Jamal
Jamal loves watching videos and playing games on his iPad. He also loves building Lego,…
Read ArticleFamily Story
I am my own self – Meet Amelia
Amelia is 16 years old. She has a 14-year-old brother, Sean. Born and raised in…
Read Article
Leading an active lifestyle with PWS
“Sport is very important, it’s good for your health, it’s not that you can’t do…
Read Article
Discovering the artist within
Hayley, our 35-year-old daughter, was born before genetic testing for Prader-Willi Syndrome (PWS) existed and…
Read Article
Putting the CARE in Childcare
We know all too well how hard it is to hand your little one over to childcare. But to hand over a child with special needs, as…
Read Article
A Tribute to Michael Andrews
I am very honoured to be invited to share with you all a tribute for…
Read Article
Cheerful Monster
If you could pick the worst candidates for ‘parents of a PWS child’ – I…
Read Article