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Archives

Dylan’s ability to ride Motorbikes encourages us all never to lose hope

Wednesday 29 April, 2020

Dylan aged 8 lives with Prader-Willi Syndrome and against all odds has learnt to ride…

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Update on PBS Growth Hormone Program for PWS

Thursday 23 April, 2020

After years many years of advocating for Growth Hormone (GH) to become available under the…

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The 15 for 15 Challenge

Thursday 23 April, 2020

Prader-Willi Syndrome (PWS) is a rare and complex, genetic disorder that affects Chromosome 15. So,…

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Victorians to continue to benefit from local services

Thursday 23 April, 2020

Thank you to our members for the ongoing support you’ve shown the Prader-Willi Syndrome Association…

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Prader-Willi Syndrome and Physiotherapy

Thursday 23 April, 2020

Physiotherapy for children with Prader Willi Syndrome (PWS) primarily focusses on the child’s low muscle…

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I can because I am Jamal

Wednesday 22 April, 2020

Jamal’s recent achievement in his swimming will see him compete at the 2021 Special Olympics…

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Clinical Trials Update

Thursday 9 April, 2020

With all the talk of vaccines for the coronavirus many of us are getting more…

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Home isolation in a PWS Specific Adult Group Home

Sunday 5 April, 2020

Of all the issues I believed we would be confronted with in 2020 in our…

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At home learning strategies for people with PWS during COVID-19

Tuesday 3 March, 2020

A summary of a presentation to the Foundation for Prader Willi Research by Elizabeth Roof,…

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PWSA VIC Strategic Planning Weekend

Tuesday 1 October, 2019

The PWSA Vic held its 2019 Strategic Planning weekend in Melbourne on the 7th and…

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