2021 PWSA Victora Time Out Camp
Each year we host the PWSA Victoria Time Out Camp. This four-day event encourages those living…
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Dylan’s ability to ride Motorbikes encourages us all never to lose hope
Dylan aged 8 lives with Prader-Willi Syndrome and against all odds has learnt to ride…
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Update on PBS Growth Hormone Program for PWS
After years many years of advocating for Growth Hormone (GH) to become available under the…
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The 15 for 15 Challenge
Prader-Willi Syndrome (PWS) is a rare and complex, genetic disorder that affects Chromosome 15. So,…
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Victorians to continue to benefit from local services
Thank you to our members for the ongoing support you’ve shown the Prader-Willi Syndrome Association…
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Prader-Willi Syndrome and Physiotherapy
Physiotherapy for children with Prader Willi Syndrome (PWS) primarily focusses on the child’s low muscle…
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I can because I am Jamal
Jamal’s recent achievement in his swimming will see him compete at the 2021 Special Olympics…
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Clinical Trials Update
With all the talk of vaccines for the coronavirus many of us are getting more…
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Home isolation in a PWS Specific Adult Group Home
Of all the issues I believed we would be confronted with in 2020 in our…
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At home learning strategies for people with PWS during COVID-19
A summary of a presentation to the Foundation for Prader Willi Research by Elizabeth Roof,…
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