Update on PBS Growth Hormone Program for PWS
After years many years of advocating for Growth Hormone (GH) to become available under the…
Read ArticleArchives
The 15 for 15 Challenge
Prader-Willi Syndrome (PWS) is a rare and complex, genetic disorder that affects Chromosome 15. So,…
Read Article
Victorians to continue to benefit from local services
Thank you to our members for the ongoing support you’ve shown the Prader-Willi Syndrome Association…
Read Article
Prader-Willi Syndrome and Physiotherapy
Physiotherapy for children with Prader Willi Syndrome (PWS) primarily focusses on the child’s low muscle…
Read Article
I can because I am Jamal
Jamal’s recent achievement in his swimming will see him compete at the 2021 Special Olympics…
Read Article
Clinical Trials Update
With all the talk of vaccines for the coronavirus many of us are getting more…
Read Article
Home isolation in a PWS Specific Adult Group Home
Of all the issues I believed we would be confronted with in 2020 in our…
Read Article
At home learning strategies for people with PWS during COVID-19
A summary of a presentation to the Foundation for Prader Willi Research by Elizabeth Roof,…
Read Article
PWSA VIC Strategic Planning Weekend
The PWSA Vic held its 2019 Strategic Planning weekend in Melbourne on the 7th and…
Read Article