2024 PWS Awareness Collection
We are excited to launch this year’s Awareness collection ahead of PWS Awareness month in May. This year, we’re embracing a powerful message that resonates deeply for every single…
Read MoreYoung Carers will provide care for a loved one in varying capacities. This could range from emotional support and assistance with household activities, lifting, dressing and feeding.
Supporting the siblings within our PWS community who have a brother or sister living with Prader-Willi Syndrome (PWS) is a vital and often overlooked aspect of our mission.
These siblings face unique challenges and emotions that can easily be overshadowed by the intense focus on caring for individuals with PWS and the understandable overwhelming surge of emotions experienced by parents.
However, recognising and addressing the needs of these siblings is paramount. By offering them support, understanding, and tailored resources, we not only validate their experiences but also provide them with the tools to navigate the complexities of their family dynamics. It is our belief that by focusing on the holistic well-being of every member of our community, including siblings, we can foster a more inclusive, empathetic, and resilient environment for all.
We have joined forces with Carer’s Gateway Young Carers and Little Dreamers to establish a comprehensive support network for the siblings within our community.
An 8-week Online Sibling Peer Support Program aimed at Siblings aged up to 25 years of age. The Program is led by two seasoned staff members from Carer’s Gateway and Little Dreamers, will kick off in Term 2 (2024).
This program will be accessible to siblings across Australia.
Recognising the unique challenges faced by siblings of individuals with PWS, Carer’s Gateway and Little Dreamers have agreed to host a dedicated PWS-specific group.
Additionally, PWSA Vic encourages siblings to explore membership in general groups and engage in the broader array of experiences offered by Little Dreamers.
If this initiative proves successful, we plan to introduce additional programs following the initial pilot, further expanding our support offerings to siblings.
We are excited to launch this year’s Awareness collection ahead of PWS Awareness month in May. This year, we’re embracing a powerful message that resonates deeply for every single…
Read MoreEaster is a time for celebration, joy, and family gatherings. However, for those in the Prader-Willi Syndrome (PWS) community, traditional Easter egg hunts featuring chocolate treats can pose challenges….
Read MoreThis conference, themed “United in Hope,” signifies an unprecedented collaboration and is expected to become the most significant international gathering focused on PWS to date.
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