Supplements

The use of supplements in people with Prader-Willi Syndrome have reported improvements in: 

• language, 
• learning 
• hyperactivity,  
• general health 
• aspects of behaviour, such as concentration 
• cellular energy metabolism 
• speech 
• lean muscle mass 
• reduced appetite  
• improved skin picking behaviours 

The Prader-Willi Syndrome Association of New Zealand provides information with regards to supplements and their use in people with PWS, on their website. The information outlined on their website has been gathered from anecdotal data available online, from discussion with their community and from the limited studies available, with advice sought from Dr Jennifer Miller (Paediatric Endocrinologist at the University of Florida). It does not take the place of medical advice and it is recommended that parents consult with their child’s doctor or dietitian before using dietary supplements.

It is also important to communicate information about ALL medications your child is taking to health care providers, including supplements, due to the possibility of serious drug interactions.

Information on the following supplements can be found here: https://www.pws.org.nz/medical-information/treatments-available/supplements

• Fish Oil
• CoEnzyme Q10
• L-Carnitine Fumarate
• Vitamin B12 (Cobalamin)
• MCT Oil
• Prebiotics and Probiotics
• Multivitamins and minerals
• N-acetylcysteine (NAC)