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The Rush Hour talks footy and PWS with David Rhys-Jones

Did you catch David Rhys-Jones on Triple M’s Rush Hour last week talking about Prader-Willi…

I’m Proud to be the person I am – Meet Tim

My Name is Tim and I am 39 years old. I live with my housemates…

A beautiful, unique child full of Love – Meet Marly

Marly is 12 years old and lives at home with her Dad Yanto, Mum Sandy…

Brave, outrageous and adventurous – Meet Jamal

Jamal loves watching videos and playing games on his iPad. He also loves building Lego,…

I am my own self – Meet Amelia

Amelia is 16 years old. She has a 14-year-old brother, Sean. Born and raised in…

Final call for Caregivers to have their say

We have received some great information regarding what an ideal model of healthcare might look…

It’s Time to have your say

We have received some great information regarding what an ideal model of healthcare might look…

Succession Planning

Through the eyes of a parent Most of you, like me, have probably thought about your children’s…

Statewide Care Plan

Do you think people with Prader-Willi Syndrome deserve better? Better care? Better support? Better understanding?…

Starting Prep Together