Archives

I can… because I am Archie

In May 2020 we took Archie to Sydney for his first NAPA Intensive. NAPA (Neurological…

Research and Clinical trials news

There has been a lot of recent activity in the field of PWS research in…

Update on the NDIS ILC “PWS First Responders Kit” Project

Earlier in 2020, the Prader-Willi Syndrome Association Victoria (PWSA Vic) received an Information, Linkages and…

Power Ranger

Four years ago, the Prader-Willi Syndrome community was lucky enough to find themselves being supported…

Volunteer to assist with a project of interest with our new project committee structure.

In 2019 PWSA Victoria successfully established various committees to ensure continuing smooth operation and delivery…

Could a Natural Supplement be the answer to ‘correcting’ the hunger in PWS Patients?

My name is Joanne Griggs, and for those, I don’t know, especially those with younger…

Wonderful Ambassadors for Prader-Willi Syndrome

The 2020 15 for 15 Challenge has raised over $28,000 and an incredible amount of…

In the media – They’re Always Hungry

In the media – AFL Footy Record – New Challenge

In the media – SEN Drive David Rhys-Jones Interview