EAP Assist
The EAP Assist counselling service is still open and taking calls from PWSAV Families and…
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At home learning strategies for people with PWS during COVID-19
A summary of a presentation to the Foundation for Prader Willi Research by Elizabeth Roof,…
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I can… because I am Archie
In May 2020 we took Archie to Sydney for his first NAPA Intensive. NAPA (Neurological…
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Research and Clinical trials news
There has been a lot of recent activity in the field of PWS research in…
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Update on the NDIS ILC “PWS First Responders Kit” Project
Earlier in 2020, the Prader-Willi Syndrome Association Victoria (PWSA Vic) received an Information, Linkages and…
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Power Ranger
Four years ago, the Prader-Willi Syndrome community was lucky enough to find themselves being supported…
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Volunteer to assist with a project of interest with our new project committee structure.
In 2019 PWSA Victoria successfully established various committees to ensure continuing smooth operation and delivery…
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Wonderful Ambassadors for Prader-Willi Syndrome
The 2020 15 for 15 Challenge has raised over $28,000 and an incredible amount of…
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Dylan’s ability to ride Motorbikes encourages us all never to lose hope
Dylan aged 8 lives with Prader-Willi Syndrome and against all odds has learnt to ride…
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Update on PBS Growth Hormone Program for PWS
After years many years of advocating for Growth Hormone (GH) to become available under the…
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