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Author: Renee Zilm

2021 PWSA Victoria Annual General Meeting

Wednesday 7 July, 2021

We invite all current Prader-Willi Syndrome Association of Victoria (PWSA Victoria) members to our upcoming…

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An orange graphic for the 15 for 15 challenge, a campaign to help raise money for a state-wide evidence-based model of care for Prader-Willi Syndrome.

2021 PWS 15 for 15 Challenge Highlights

Wednesday 23 June, 2021

Thank you 🧡 Thank you 🧡 Thank you 🧡 We have been blown away by the incredible generosity…

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‘Summer Days’ – Katia’s Song

Saturday 19 June, 2021

As we watched our daughter, Katia, perform her song, ‘Summer Days’ on ABC Radio on…

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In the media – The Front Bar

Saturday 22 May, 2021

Did you catch David Rhys-Jones on this week’s The Front Bar? We’ve recorded his feature…

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In the media – 3AW Breakfast

Tuesday 18 May, 2021

Great to hear our Ambassador David Rhys-Jones on 3AW’s top-rating Ross and Russel Breakfast Show…

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The History of Prader-Willi Syndrome Awareness Month

Tuesday 13 April, 2021

During the month of May Community organisations, Associations and Foundations, Families and Supporters of people…

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Members, Friends and Families of the Prader-Willi Syndrome Association of Victoria gathered together in a park, all smiling at the camera.

Reconnecting with our community after COVID

Tuesday 9 February, 2021

After close to a year of lockdown and restrictions, we are eager to reconnect with…

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A collage of photos taken of participants at the previous PWSA Vic Time Out Camp, with Time Out Camp 2021 logo in the centre.

Time Out Camp Postponed until September 2021

Tuesday 9 February, 2021

It is with our deepest regret that the 2021 PWSA Victoria Time Out Camp will…

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Cheerful Monster

Wednesday 3 February, 2021

If you could pick the worst candidates for ‘parents of a PWS child’ – I…

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Santa Claus says “Christmas will not be cancelled this year”

Wednesday 18 November, 2020

The Prader-Willi Syndrome Association of Victoria (PWSA Victoria) recognises that our families have felt the…

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The PWSA of Victoria Web Site is intended to provide information only - not to diagnose or advocate particular treatment options. The Diagnosis and treatment of Prader-Willi Syndrome should be made through a qualified medical professional. Thus, it is strongly urged that patients do not change treatment without first consulting their doctor. The inclusion of any resource or link in the PWSA of Victoria Web Site does not imply endorsement.
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PWSA Victoria Support line
0451 797 284